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The Mutant Project: Inside the Global Race to Genetically Modify Humans
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19/99
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About This Book
An anthropologist visits the frontiers of genetics, medicine, and technology to ask: Whose values are guiding gene editing experiments? And what does this new era of scientific inquiry mean for the future of the human species? "That rare kind of scholarship that is also a page-turner."—Britt Wray, author of Rise of the Necrofauna At a conference in Hong Kong in November 2018, Dr. He Jiankui announced that he had created the first genetically modified babies—twin girls named Lulu and Nana—sending shockwaves around the world. A year later, a Chinese court sentenced Dr. He to three years in prison for "illegal medical practice." As scientists elsewhere start to catch up with China's vast genetic research program, gene editing is fueling an innovation economy that threatens to widen racial and economic inequality. Fundamental questions about science, health, and social justice are at stake: Who gets access to gene editing technologies? As countries loosen regulations around the globe, from the U.S. to Indonesia, can we shape research agendas to promote an ethical and fair society? Eben Kirksey takes us on a groundbreaking journey to meet the key scientists, lobbyists, and entrepreneurs who are bringing cutting-edge genetic engineering tools like CRISPR to your local clinic. He also ventures beyond the scientific echo chamber, talking to disabled scholars, doctors, hackers, chronically-ill patients, and activists who have alternative visions of a genetically modified future for humanity. The Mutant Project empowers us to ask the right questions, uncover the truth, and navigate this brave new world.
Reviews
"However, Kirksey's discussions of the affordability problem yield no convincing solutions, and he...repeatedly refers to one person or another as a 'white guy,' striking an odd note."
"Recommended for anyone interested in the brave new world of genetic engineering technologies."
"The Mutant Project might provoke and disturb as it raises unsettling questions about the nature of human life, technology and corporate and personal greed, but Kirksey's entertaining and fascinating combination of detective story, medical history and ethics is a must-read."
"Lucid study of recent efforts to alter the human gene to end hereditary diseases, a project fraught with ethical and medical implications ..."
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